Daily life is an enormous struggle to keep her well, she sees 5 different consultants but has no coordinated care. She has recently tested positive for elevated levels of the chemicals (mediators) released by mast cells and her doctor is confident that she is suffering from MCAS. Every aspect of Lily's life has to be thought through and planned - from food to potential triggers everywhere she goes and her parents do everything possible to balance avoiding triggers with living as normal a life as possible for a 7 year old! Lily can have symptoms from walking past someone in the street with strong perfume on, she cannot go through the aisles in shops with strong smells (cleaning products, beauty etc), if she cools down or heats up too quickly it can make her feel really unwell. She will often be curled up on her Mum's lap instead of running around with her friends as she feels too poorly to join in. Sometimes she is in so much pain that she will sit crying and asking why this is happening to her.
We finally developed a method to make custom guy rings for these mast sections. They are available in strong 1/8-inch-thick high-quality 6061-T6 ALUMINUM , which we then paint to match the mast sections, see pictures on Accessories page. These new aluminum guy rings are laser-cut to our specifications and fit nicer than our former steel versions. Priced at $ each, or 3 for $. If you are using the full 10 section height of 37 ft. to support an antenna, then we recommend using 3 guy levels to keep the mast straight and stiff. And, to protect the guy line from the sharp metal edge of the guy ring attachment holes, we offer 3/16 inch diameter quick-links, rated for 660 lbs, for attaching your guy line, at $ each. You’ll need one quick-link per guy line. See the Accessories page for more info.
I had a PICC line placed in my left arm about three inches above the elbow. The poor PA who placed it was terrified. She called me the day before to go over the procedure in pinched, staccato notes. She casually mentioned that she was considering doing the placement in the ER since they would have a crash cart nearby. The infusion nurses had regaled her with stories of my reactions and anaphylaxis history. I laughed and then felt bad about it. “Whatever you need to feel comfortable is fine,” I told her. It is the first time I remember a provider being scared of my disease.